World Duchenne Awareness Day

One in 3,500 newborn boys in the world is affected by a rare and fatal disease Duchenne muscular dystrophy. One in 3,500 might seem a drop in the Ocean of whole human race if we merely focus our attention on statistics. Moving from data to value, the value of life, we can discover that that drop forms a great sea made up of families, researchers, volunteers, clinicians, activists. All of them work day by day to guarantee access to care. To improve research, to educate patients and families. Teun van Wi.

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Duchenne Parent Project Duchenne Spierdystrofie

Wat is Duchenne Spierdystrofie? Hoe vertel ik het mijn familie? Betere zorg en hulpmiddelen. Wat is Duchenne Spierdystrofie? Hoe vertel ik het mijn familie? Betere zorg en hulpmiddelen. Bekijk alle onderzoeksprojecten die wij financieren. Bekijk alle informatie die wij voor ouders hebben. Kom ook nu in actie. Start hier je eigen actie of sponsor een actie. Wat is Duchenne Spierdystrofie? .

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Omaira Gill Freelance Journalist

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Insamlingsstiftelsen för Muskeldystrofiforskning Insamlingsstiftelsen för Muskeldystrofiforskning

Som kan underlätta deras vardag. Duchenne Awareness Day 7 september. Mer stöd och forskning behövs. De insatser SMDF har kunnat stödja har varit betydelsefulla, men är inte tillräckliga. Hur kan du hjälpa? Professor Ma.

TREAT-NMD Advancing diagnosis, care and treatment for people with neuromuscular diseases around the world.

Donate to the TREAT-NMD Alliance. Nominations for Executive Committee members. Draft of EU data protection regulation. Neuromuscular care and trial centres. Care and trial site registry. What is a patient registry? List of registries by disease. Why use the BioBank? .

Parent Project Onlus - Una terapia per la Distrofia! - Una terapia per la Distrofia!Parent Project Onlus Una terapia per la Distrofia!

Torneo di calcio a 5 Federico Cimitan. Chi ci sostiene, fa bene. Al futuro, alla ricerca, alla vita. Si terrà il 4 settembre 2015.

Accueil - Fondation La Force

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World Duchenne Awareness Day

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One in 3,500 newborn boys in the world is affected by a rare and fatal disease Duchenne muscular dystrophy. One in 3,500 might seem a drop in the Ocean of whole human race if we merely focus our attention on statistics. Moving from data to value, the value of life, we can discover that that drop forms a great sea made up of families, researchers, volunteers, clinicians, activists. All of them work day by day to guarantee access to care. To improve research, to educate patients and families. Teun van Wi.

PARSED CONTENT

The domain worldduchenneday.org states the following, "One in 3,500 newborn boys in the world is affected by a rare and fatal disease Duchenne muscular dystrophy." We observed that the website also stated " One in 3,500 might seem a drop in the Ocean of whole human race if we merely focus our attention on statistics." It also stated " Moving from data to value, the value of life, we can discover that that drop forms a great sea made up of families, researchers, volunteers, clinicians, activists. All of them work day by day to guarantee access to care. To improve research, to educate patients and families."

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